{ugh}
Sunday~ July 22, 2007
These past few days have been rough. We thought we were in the clear with the whole HSP thing...but Thursday night Kaylee was up from 12 mid until 6:30 am with major stomach cramps. Michael and I were managing well, thinking it would last only a few hours, like the night before...but when 4 am came along, we were tired...her cramping just kept going and going...with maybe a 5 min break here or 10 min there...by 6:30 am, we finally gave her the next dose of prednisone (which was 3 hours early) and she finally slept. We didn't want to go through that again, talked with the doc, came up with a plan...but her cramping started up again about 7 pm, and by 9 pm we knew it wasn't working...
So, here we are, Sunday...with a plan that works much better (doubling her dose of prednisone) especially now that we figured out that the concentration levels between her 1st and 2nd prescriptions were WAY off...Hopefully we won't have any more problems and Kaylee WILL be on the mend!
Thank you again to those who have helped with our kiddos, and prayed & fasted for Kaylee. We hope to report happier updates of her health soon!!
Tuesday~July 24, 2007
Well...The past few days since I wrote the above, have been good.
Sunday night was a bit rough...she was still having some painful cramping, but after a prayer together, she calmly took her phenobarbital & then another dose of prednisone (7mg) and then slept through the night. We really appreciate our doc/neighbor. (He's given us his cell phone number so we can reach him directly, and boy have we been calling him.)
Monday~ had to have blood work done, Kaylee was brave. Ended up that they just couldn't get to a vein, so they had to "milk" her finger. By 5:30 pm-we gave her 1/3 of her prednisone because her stomach was beginning to hurt...then another 1/3 at 6:15 pm. She has some new spots, round 3, appearing on top of her disappearing ones from round 2. They are now on her palms as well as the bottom of her feet. Plus her ankles are achy. She slept fine through the night.
Today~except for the spots, all seems well. We pick up another prescription this pm. Should be the correct concentration and etc. She is playing, swimming a bit, back to practicing her piano, reading and drawing.
We'll see what the next few days bring. Thanks for reading and keeping tabs on us :P
These past few days have been rough. We thought we were in the clear with the whole HSP thing...but Thursday night Kaylee was up from 12 mid until 6:30 am with major stomach cramps. Michael and I were managing well, thinking it would last only a few hours, like the night before...but when 4 am came along, we were tired...her cramping just kept going and going...with maybe a 5 min break here or 10 min there...by 6:30 am, we finally gave her the next dose of prednisone (which was 3 hours early) and she finally slept. We didn't want to go through that again, talked with the doc, came up with a plan...but her cramping started up again about 7 pm, and by 9 pm we knew it wasn't working...
So, here we are, Sunday...with a plan that works much better (doubling her dose of prednisone) especially now that we figured out that the concentration levels between her 1st and 2nd prescriptions were WAY off...Hopefully we won't have any more problems and Kaylee WILL be on the mend!
Thank you again to those who have helped with our kiddos, and prayed & fasted for Kaylee. We hope to report happier updates of her health soon!!
Tuesday~July 24, 2007
Well...The past few days since I wrote the above, have been good.
Sunday night was a bit rough...she was still having some painful cramping, but after a prayer together, she calmly took her phenobarbital & then another dose of prednisone (7mg) and then slept through the night. We really appreciate our doc/neighbor. (He's given us his cell phone number so we can reach him directly, and boy have we been calling him.)
Monday~ had to have blood work done, Kaylee was brave. Ended up that they just couldn't get to a vein, so they had to "milk" her finger. By 5:30 pm-we gave her 1/3 of her prednisone because her stomach was beginning to hurt...then another 1/3 at 6:15 pm. She has some new spots, round 3, appearing on top of her disappearing ones from round 2. They are now on her palms as well as the bottom of her feet. Plus her ankles are achy. She slept fine through the night.
Today~except for the spots, all seems well. We pick up another prescription this pm. Should be the correct concentration and etc. She is playing, swimming a bit, back to practicing her piano, reading and drawing.
We'll see what the next few days bring. Thanks for reading and keeping tabs on us :P
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